Although a formal committee of Brighton & Hove City Council, the Health & Wellbeing Board has a remit which includes matters relating to the Sussex Integrated Care Board (ICB)), the Local Safeguarding Board for Children and Adults and Healthwatch.
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Title: Learning from the Lives and Deaths of People with a Learning Disability and Autistic People (LeDeR)
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Date of Meeting: 11 February 2025
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Report of: Sussex Integrated Care Board
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Contact: Edel Parsons
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Email: edel.parsons@nhs.net
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Wards Affected:
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FOR GENERAL RELEASE
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Executive Summary
This report presents learning from the most recent year’s (2023-24) reviews into the deaths of people with a learning disability and people with autism. The LeDeR programme reviews premature deaths in order to help identify the service improvements required to address the health inequalities experienced by people with a learning disability and people with autism.
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1. Decisions, recommendations and any options
1.1 That the Board notes the information provided in this report (Appendix 1).
2. Relevant information
2.1 LeDeR has been operational in Sussex since 2017, with the annual findings of LeDeR reported to the relevant service and service commissioners and shared with Sussex Health & Wellbeing Boards for information.
2.2 Appendix 1 contains the LeDeR Annual Report for 20123-24.
3. Important considerations and implications
Legal:
3.1 This report is provided to the Board for information relevant to its functions. It is a function of the Health and Wellbeing Board to set strategic direction to improve the health and wellbeing of people locally; this includes addressing the health inequalities experienced by people with a learning disability and people with autism.
Lawyer consulted: Sandra O’Brien Date: 27/01/25
Finance:
3.2 There are no financial implications to this report.
Finance Officer consulted: Date:
Equalities:
3.3 The purpose of the LeDeR programme is to reduce the health inequalities people with a learning disability face, by attempting to understand the determinants that underpin them. Sussex commits to the delivery of the LeDeR program which includes the additional protected characteristics under the Equalities Act 2010.
Sustainability:
3.4 No implications identified
Health, social care, children’s services and public health:
3.5 These implications are explored in the LeDeR Annual Report 2023-24 (Appendix 1)
Supporting documents and information
Appendix1: LeDeR Annual Report 2023-24
Appendix 2: LeDeR presentation slides